That said I have a resting HR of ~40 (always have). All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. He will be rechecked with an echo, BNP blood test & MRI every 6 months. Bicuspid aortic valve (BAV) and congenital aortic stenosis are two types of heart defects that may be present at birth. Im 39 also diagnosed with BAV when I was 31. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. We have contacted the Cleveland Clinic to learn more and will report back soon. I was also advised that it is really the static weight-lifting that could pose a problem. What he did say is there are no signs of stenosis, and my heart looks very strong. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? Im 32 years old and back in 09 I discovered I have a BAV. There are simply no reports that describe the experience of athletes returning to ECer ise (or training) after aortic dissection. lifting a max bench of 150 lbs I wonder if there is also a psychological factor involved. Glad to hear that youve found a surgeon and settled on a plan. Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. Im a 33 yro female, diagnosed with BAV. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. Doing nothing wont be great for my heart and wont extend my life neither probably.. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. Eventually I will need valve replacement. This award-winning website has helped over 10 million people fight heart valve disease. My question is: is it okay for me to participate in weight lifting with BAV? Good to hear that youre doing well. He sees his cardiologist every year. Given my age and activity level, do you think it would be beneficial, or even prudent, to explore a valve repair surgery as you described above? When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. They all underwent aortic valve replacement. Think to report back to let us know how things go for you, personally. Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. I guess my marathon training is officially over, but i hope that i still keep doing some sport and i dont mean bowling, no offense for who practice it ;). Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. Bicuspid aortic valve is a common congenital anomaly but does not cause functional problems unless aortic valve stenosis, aortic valve regurgitation, aortic root dilatation, or dissection or infective endocarditis occurs. "I Googled 'womens' heart attack symptoms,' " her blog post continued. Danny. He had a mild BAV and was told that he can play with no restriction. Perhaps the doctor could contact the specialist and request an earlier appointment, if that made sense. Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. Now, fully healed thanks to two stents in her arteries, Lucci is spreading the word. We just saw the cardiologist in July and again same symptoms and no significant cardiac changes . The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. Finally, athletes are not spared. This is thought to occur at a rate of about 0.1% per year in adults. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. This can cause the valve to malfunction and prevent blood from flowing correctly from the . Your situation is complicated.and it wont be possible to give a complete answer here without additional information. Some people with bicuspid aortic valve will have symptoms in early childhood. Hi Larry, My son was also complaining of shortness of breath with stairs mild and feels tired more easily. My son was diagnosed with BAV, by chance, when he was 7. The only prudent course is to have periodic follow-up imaging to keep track of size/growth. Aortic Valve Regurgitation | 8 Causes, Does It Worsen, & Prognosis Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. Get your act together, Columbus! Most people require treatment once symptoms develop. Youre right, though. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. I would prefer not to stop. I do not feel any of the effect of my condition when I run or workout. You didnt mention your age, but obviously youd hope that whatever operation is performed.lasts a lifetime. Is there any research on this? Center for Bicuspid Aortic Valve Diseases | Penn Medicine Im followed by a cardiologist who only says not too much weight lifting.. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? I had multiple re-hospitalizations but seemed to recover. I was wondering if you could give your opinion on my scenario. I was diagnosed age 4 and am now 35. An early indicator of BAV is a heart murmur, which is an abnormal sound caused by the turbulent . I certainly know runners, cyclists, and triathletes in that circumstance who are active and doing well. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. They wont repair my aneurysm unless it was 55mm during surgery or 60mm before surgery. I think we should have a choice??? Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. I had AVR exactly 1 year ago to the date. Tetyana. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. I went through the regiment of meds that are prescribed post AFIB. I have a call in to his doctor but what do you think? Bicuspid Aortic Valve - Nationwide Children's Hospital I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. We briefly talked about the Ross procedure vs mechanical valve replacement. Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. I cant thank you enough for your responses to all the above questions. I made appointment with my cardio, to clear that up, dont worry :). I think we would expect less enlargement over time with stopping strenuous exercise. Lynn. Celebrities with Heart Valve Disease | Wonder Barb. Its very helpful for people with heart problems. Kim Kardashian Doja Cat Iggy Azalea Anya Taylor-Joy Jamie Lee Curtis Natalie Portman Henry Cavill Millie Bobby Brown Tom Hiddleston Keanu Reeves. Biscuspid Aortic Valve with trivial AR I cant think like a nurse where hey is concerned. Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves. Athletes will ask when they can return to their sports. My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. The heart has a difficult time coping with extra demands of exercise. Consult your doctor to see if there are any restrictions that would be specific to your case. How severe are the problems? I started experiencing palpitations last year along with several instances of light-headedness. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. This is ridiculous. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. Theres no reason to not be CPR certified.. Since you have the ready info about your aortic sizes over time, I will guess that you have a doctor or cardiologist that you are working with. "Listen to the voice inside, the one we all so easily ignore. In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. Many people in your situation will eventually need operation for replacement of the valve or the aorta, but wed need a crystal ball to know about the future. Thank you very much for your answer. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. Youll need to rely on your doctors for advice about your condition. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. It has allowed me to do the thing I enjoy doing in life. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). How a Fitness Trainer Manages Bicuspid Aortic Valve Disease - Men's Health Brave Dublin teen Sinead fights back from heart surgery to make beloved He was forced to stop playing football at 11. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. I say this based on the fact different exercises will allow for differrent weight tolerances than others, in addition, stronger people can handle more weight than others. Thank you very much for writing such a thorough and well informed article. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. Celebrities with congenital heart disease Details Published: January 27 2016 . A different set of. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. I have had three annual Echocardigrams, the first two showed mild stenosis, mild LV thickening. I am wondering if you know anything about these drugs and how they can impact aortic growth? Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfanss syndrome.
