Radioactive iodine (often abbreviated RAI) is a therapy used to treat hyperthyroidism and thyroid cancer. They all tell me Thyroid Cancer is the easy cancer. There are 37 known isotopes isotopesA form of an element that has the same number of protons but a different number of neutrons in the nucleus, giving it a different atomic mass. Most thyroid patients who receive RAI treatment eventually end up hypothyroid and will need to take thyroid hormone replacement drugs indefinitely. Its often a far better use of your time to find a new doctor than try to convince an old doctor to change what they think: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/. After Your Radioactive Iodine Treatment Getting home. It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. Radioactive iodine ( 131 -I) is a radioactive isotope that is administered orally, in a liquid or capsule form. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. They said it was Any help will be appreciated. Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. They may even preemptively schedule you to start thyroid hormone treatment within a few weeks of the RAI procedure, just to be safe. OR IT WILL BE GIVE ME PROBLEM? It is also called radio iodine. Family Medicine 59 years experience. ordinary table salt and sea salt. It is a measurement of thyroid function, but does not involve imaging. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Your article is quite interesting. RAI is a form of radioactive nuclear medication that permanently destroys thyroid tissue. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. This ThyCa has kicked my Gluteus Maximus but good! And that training tells me I wont be ready to go back to work that afternoon. The entire goal of the procedure is to put radioactive iodine molecules into your body with the sole purpose of destroying your thyroid gland. Some people, however, may have further trouble after their treatment and suffer from weight gain . They ran many tests including an cerebral angiogram to check for a brain tumor which I doubted. can i color my hair after radioactive iodine. The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. 2022 Dr. Westin Childs | Thyroid & Health Supplements That Work Built withGeneratePress and powered by Kinsta. Here are 4 ways you can get more help right now: #1. <0.01 Theres a higher risk that the cancer comes back but its also a way to preserve some thyroid function. The researchers found that the proportion of overweight people increased from 9.6% to 18.5% (almost double) and the proportion of obese patients increased from 6.4% to 21% (almost quadruple) (4). Sleep apart from adults by at least six feet (a separate bedroom is recommended) and avoid sexual activity. One study looked at 157 people and tracked them both before and after their procedure. So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. Life has been very difficult as I basically go very few places now and live a life with little social contact. Thank you! I dont want to go back to him but no one else will see me without a referral since Im still considered his patient. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. This particular visit, my HA1C was up to 6 point something, and caused alarm as I am strict with my diet, admit though at that time I allowed myself a free day to eat as much and all the treats I wanted or craved. It can also help to diagnose and treat some other cancers and conditions. When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. Then PCP wants B/P readings and daily weights. Credit: iStock. I am getting ready to have thyroid removed due to cancer. Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. I had severe fatigue, sweats etc and they did labs and said my count was high 5.4 and referred me to a civilian provider. My hair has always been my pretty part of me, the one thing that makes me feel like a pretty girl. Is there anything I can do to protect myself as I am driving her. June 10, 2022 . Restoring your metabolism will have more to do with your dose of thyroid medication than anything else. Radioactive iodine treatment. Hello, not sure if this post is still active. The trip will be about 45 minutes each way. Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. I cant find anything suggesting these are expected symptoms after RAI. Symptoms of a moderate or severe reaction that require urgent medical care include: Severe vomiting. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. Homocysteine down to 11.5, methlymalonic acid down to 257. Radioactive iodine is absorbed and concentrated by the thyroid gland. Dr.DanielleWeiss is the founder of the Center for Hormonal Health and Well-Being, a personalized, proactive, patient-centered medical practice with a unique focus on integrative endocrinology. You can obviously survive after RAI (otherwise they wouldnt do the procedure) but I want to teach you how to thrive afterward. I had RAI treatment 4 weeks ago 29.9 mci due to hyperthyroid hot noduals. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. In earlier forms of Iodine contrast, people with Myasthenia gravis faced an increased chance of exacerbation of the disease. and seriously lethargic?! under the skin, like a vaccine) and the radioactive iodine is quickly absorbed into the bloodstream. Radioactive iodine works by taking advantage of the physiology in your body (1). Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. can i color my hair after radioactive iodine. Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. So I have graves disease but was only diagnosed because I was actually gaining weight. A large study found an increase in some cancer types in people who had radioactive iodine treatment for hyperthyroidism compared with the general population. If you havent already then you would probably want to make sure it isnt your other hormones causing these issues. Nuclear medicine uses small amounts of radioactive material called radiotracers. Keep Your Distance. Leave a Comment Cancel Reply . Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). Shower once a day to rinse away the leftover radioiodine, but make sure to scrub the shower well after using it. So, I ate what I could and left the rest. And to key to getting there is to understand what happens to your body after this procedure and how it influences your thyroid function. I can barely eat . Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. I will know more in a few days when he has all the pathology reports back etc. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ My throat is killing me and outside of my neck is swollen. We know that that still leaves lots of options if your heart isn't already set on a color. Hi! I moved doctors in 2016 and my new GP immediately put my dosage down to 125 despite my protestations that I felt absolutely fine on 150. Are you thinking about getting radioactive iodine treatment? Very small amounts of iodine may also be taken up transiently by . 2 Capsules of Thyroid Adrenal Reset Complex daily https://www.restartmed.com/product/thyroid-adrenal-reset-complex/ Hi , I just had ROI treatment done a little over a week ago . He also told me something about an injection of something, as well as being on some sort of thyroid hormone replacement therapy for the remainder of my life. https://www.restartmed.com/weight-loss-after-thyroid-removal/, Hello I had the rai treatment 33 years ago and I have never felt good since then , more recent they ultrasound my thyroid gland and the lady who did the ultrasound kinda freaked out saying to me where is your thyroid gland hat did they do it it, I was in the hospital with pancreatitisNo dr has told me there could be a reason for getting pancreatitis with hypothyroid and how can my blood tests say my thyroid is producing hormones and is low which means high . It is what it is. So for the last 6 mos Ive had to take Levothroxine. It's permanent; once you take the iodine capsule there is no changing your mind. The thyroid gland is the only tissue in the body that takes up and holds onto iodine. 4. Some people also feel flushed. I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. Doctors tell cancer patients that the thyroid is the only tissue which takes up iodine, thus making this a safe form of cancer treatment that will not . So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. Radiation can be measured around your body and I-131 is present in your skin oil and sweat. Instead, you are now hypothyroid (7) (meaning you dont produce enough thyroid hormone on your own). Hair that is not being treated directly with radiation can be dyed. Within the first 2 years I gained 15 pounds with no diet/lifestyle change. (Pat). In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. I have a quick question. It sounds like you are not being treated adequately. No, you won't lose your hair after a radioactive iodine treatment. Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. I go to great lengths to help my users better understand their health; however, the content you see here is not a substitute for medical advice. Generally, yes. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. Im planning on RAI in the next 2 weeks. 8PM HS snack and VS and glucose readings. TSH. Anna Thomas. My endo physician would not increase the dosage so I went to my G.P. I guess that is my main question because I am willing to do the hard work even if it takes a long time. IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! After you get the dose, the scanner checks your entire body for signs of radioactivity. and I'm proud to say that over 80,000+ people have used them over the last 6 years. This is possibly TMI but any guidance and suggestions would be greatly appreciated. Youll still need to get those but the supplements can be used in addition to them. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. The last person put me on methazolo and I read the awful side affects. A second set of scans will be taken after the contrast dye has been given. Sign up to receive 20% off your first order. Now I cant stand the heat and I used to go to the beach all the time. I cannot take anything other than porcine thyroid with rice flour as filler (compounded). You get it in liquid or pill form. With all I forgot I had posted prior. I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. I was normal weight and now frustrated to be 30 pounds overweight. Rarely, people can feel pain in their neck. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. I had RAI in 2010 and was eventually started on a regime of 150 Levothryroxine daily, about 8 weeks post treatment. By looking at markers such as your TSH, free t3, and free t4 you can get an idea as to what is actually going on. the tests after 3 weeks showed my TSH to be 12.920 and now she wants to increase the meds to 175. Need better symptom control? Serum folate levels was :17.1(2.0-18.7)b12 vitamin levels was :565 (197-771)ferritin levels was :175.9(30-400)red cell count was :4.87(4.25-5.77)white cell count was :5.6(4.5-13.0) I dont understand how this happened sir ? 3 weeks after I was taken off of PTU. Perhaps the most concerning of all of the issues after RAI is weight gain. If you are a man, just be sure to consider this before you get your operation. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. You can drive yourself, have someone pick you up and take you home, or take a taxi or private car. So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. 5PM supper with VS and glucose readings. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day-to-day basis. Neck tenderness and swelling. If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. You usually take radioactive iodine as a capsule that you swallow. This is my story. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. This isnt always true, but it is true for MOST people. 240-760-6600. I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. After all, didnt the radioactive iodine work to reduce your overall thyroid hormone production? For most people, this means that you can expect to live at 80-90% of your 'normal'. Thank Sharon. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I cant get my weight to budge more than 5-10 pounds. Thyroid Hormone Resistance: What is it & How to Diagnose it. With that in mind, lets jump into what you should expect after your procedure. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. Welcome to my website! of iodine, and only one is not radioactive (Iodine-127). Is it healing and producing its own thyroxine now? Abnormal menstrual cycles. I keep telling them that I dont feel so good flaking nails, dry skin, fatigue, weight-loss resistant with brain fog. Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. My symptoms include very dry skin, heart problems, severe pain, muscle problems, joint issues, sometimes brain fog, hair is brittle and dry, constipation, stomach issues, basically nothing is right since the treatment. You can opt-out at any time. So, fast forward to February of this year, all blood tests were negative for signs of cancer, so no fine needle biopsy was done, and at that point it was just a simple goiter, and was supposed to simply have a partial right side lobectomy, and after a couple weeks return to work and life goes on. In this procedure, you are intentionally given Iodide, I-131, which emits radiation. This means avoiding public transportation, hotels, carpools, and in some cases, your . I dont see such good numbers. You can eat the following foods because they contain very low levels of iodine: fruits and vegetables including potatoes. Since the science is inexact there are two ways of approaching the treatment. . Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. I am considering following up with the endocrinologist in the morning. Be wary of home-use products, and use recommended professional products for dye, highlights and conditioning. This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, its worth knowing about. The thyroid gland relies on iodine to make the hormones necessary for the growth of healthy hair, teeth, and bones. Question. Radioiodine treatment avoids surgery, anesthesia, and anti-thyroid drugs. This is an extension of what weve already discussed but its worth spending some time on this specific point. One thing I didnt see in your article is the correlation of Thyroid to Diabetes and CTS. I also used Nioxin shampoo. What is your life going to be like after radioactive iodine treatment? Im a nurse, and tend to over think things. Please help! I am 67 years old and just wonder how many years I may have either way. I had RAI 20 plus years, I am 56 and my numbers are good. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. I am 70 years old and I am beginning to worry. Radioactive iodine can also show whether cancer has spread beyond the thyroid. My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) If you dont have thyroid hormone at all then you risk the chance of coma and death. Over the next 5 years I gained another 10 lbs. You wouldnt want to use a steroid on it unless you know what it is. You can find some tips and tricks on how to find the right type of doctor here: https://www.restartmed.com/thyroid-doctor/. My weight seems to be of no concern to him as long as my blood work looks okay. Memory loss. Yes, radiation therapy causes hair loss. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. To help prevent thyroid problems that may cause hair problems, it's important to get sufficient dietary . But, I am having a lots of rashes all over my neck and scalp, it got swollen and bumps. Too much of this hormone can lead to [] Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. Difficulty breathing. So I stopped going. This is probably not what you want to hear, especially if this is a procedure that is necessary for your health, but its still important to know about it. It does have effect : Radioactive dyes containing iodine of the iodide type can cause permanent thyroid damage and cancer. Radioactive Iodine. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. The hardest time I had and have with my diet is getting hospital dietitian to understand that vegan/plant based does not mean fish and chicken are allowed. Cats can receive a second treatment, if necessary. Looking forward to your feedback . What medications (if any) will you need to be on? If it doesnt go away then you have your answer, and if it does go away then you also have your answer. Claim Your Free eBook Now. The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. Iodine is a mineral that your thyroid uses to create thyroid hormone. https://www.restartmed.com/product/t3-conversion-booster/ Then she said I would have to have iodine radiation if these pills didnt work. However, it affects only the body part that is being treated with radiation. She is the author of "The Thyroid Diet Revolution.". If so, what are you struggling with? Iodine and Hair Loss. Also I drink 100 ounces of water plus other hydrating fluids and food per day. The study followed people for 26 years after two or more treatments. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. Doctors made me think it was my only option at the time. I have tried everything and it is frustrating. You may gain weight after you undergo radioactive iodine treatment. Hi doc! I was originally on Synthroid for a while and as I got older my body changes and T3 was required for optimal levels. Please help me what to do with this. How can I speed up a metabolism if I dont have a thyroid anymore because of the RAI? The good news is that this particular side effect doesnt last very long (compared to some of the other issues we will be discussing next). What type of cancer is treated with radioactive iodine? Swelling and tenderness of the salivary glands. The I-131 leaves your body through your urine primarily. There is nowhere else to go tricare insurance is awful. You may also experience nausea and vomiting, as well as a decrease in appetite. And Ive become Flat with my emotions now. A high uptake of radioactive iodine suggests Graves' disease. If weight loss is your primary goal then I would take a look at my weight loss program here: https://www.restartmed.com/hormone-mastery/. Thank you. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. The recommended timeframes are based on the size of the dosage you are receiving, so discuss the specifics with your healthcare provider prior to treatment.
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